Patient Caretaker Guide: Resources to help family, friends, and others who give care
Having a loved one diagnosed with cancer is often an overwhelming experience. For many, life is changed completely. For family and friends, this can also mean more responsibility is needed to help support your loved one. Caregivers are an essential part of the whole cancer care support team. Many people can feel thrown into a caregiver role and feel lost on how to navigate this complex new world.
We've designed this Cancer Patient Caretaker Guide in order to help family and friends navigate the complicated issues cancer caregivers face. Within this guide, you will find information on how to support a loved one and yourself, obtain a better understanding of the healthcare team and learn about other supportive resources. In addition, you will find helpful worksheets to keep track of vital details.
As always, your Compass team remains available for any questions or concerns.
To receive a printed copy of the guide please ask your clinician or social worker, or click here to view a digital copy of the Patient Caretaker Guide.
- Organizing/ Monitoring:
- CareZone - "Health Info Organizer," CareZone helps caregivers keep track of medical information by organizing medication, allergies, insurance cards, and ID cards all in one place. Through the mobile app, caregivers can also create to-do lists to keep track of appointments and medication times. The app also curates news relevant to your loved one's illness, disability or condition.
- LivingWith: build a circle of support, organize help for daily tasks, share how you’re feeling, keep important information from MD visits, write down questions, organize test results, labs and medications in one spot
- Cancer.net App: track symptoms, medications and note questions for your healthcare team and access information from cancer.net regarding different cancer diagnosis and treatments
- Caregiver Support:
- 211info – resources for health and social services in Oregon/Southwest Washington
- Alzheimer’s Caregiver Buddy: Support for caregivers with daily routine, communication, behaviors, how to deal with wandering, bathing, meals
- First Aid by American Red Cross- First aid and CPR.
- iTunes: Caregiving podcast network
- iTunes: caregiver SOS
- iTunes: Happy, healthy caregiver
- To Hire a Caregiver:
- Care.com- helps you find temporary, qualified care for your loved ones — including caregivers specializing in the needs of people with disabilities and aging populations
- The Caregiver Helpbook by Marilyn Cleland and Vicki Schmall, 2013- ISBN-13: 978-0615856100
- Who Says Men Don’t Care? Gambone, James, Ph.D., Rhonda Travland, MS, 2011
- Passages in Caregiving by Sheehy, Gail, Harper Collins, 2010
- Start with Gratitude: Daily gratitude journal, 2018
- American Cancer Society Caregiver Resource Guide: https://www.cancer.org/treatment/caregivers/caregiver-resource-guide.html
- ASCO Answers Caregiving: https://www.cancer.net/sites/cancer.net/files/asco_answers_guide_caregiving.pdf
- City of Hope Communication Guide for Caregivers: https://clinicalcc.files.wordpress.com/2015/06/download.pdf
- Tools for Caregivers: http://www.powerfultoolsforcaregivers.org/
- Family Caregiver Alliance: https://www.caregiver.org
- AARP: https://www.aarp.org/caregiving/
- Eldercare locator: https://eldercare.acl.gov
- National Alliance for Caregiving: https://www.caregiving.org/
- National Family Caregiver Support Program: https://acl.gov/programs/support-caregivers/national-family-caregiver-support-program
- Caregiver Action Network: https://caregiveraction.org/
- Family Caregiver Council: http://familycaregivercouncil.com/
- ARCH National Respite Network: https://archrespite.org/
- Online caregiving community: https://www.caregivers.com/
- WA State DSHS Caregiver resources: https://www.dshs.wa.gov/altsa/home-and-community-services/caregiver-resources
- Caregiver support in Oregon: https://adrcoforegon.org/consite/explore-caregiver-supports.php
- Well spouse association: https://wellspouse.org
- This is Living with Cancer